Self-perception of parents to the multidisciplinary treatment of children served at the cleft lip and palate clinic of UCACUE

Authors

DOI:

https://doi.org/10.29166/odontologia.vol26.n2.2023-e4151

Keywords:

self-perception, cleft lip and palate, clinical protocol, parents

Abstract

Introduction: The second most frequent congenital malformation is cleft lip and palate. Parents need advice on the management and multidisciplinary treatment plan that will accompany them throughout childhood and adolescence. Objective: To identify parents' self-perception of their children's multidisciplinary treatment at the Cleft Lip and Palate Clinic of the UCACUE.  Material and Methods: A descriptive, cross-sectional, documentary-type study was carried out using surveys of the representatives of children and adolescents attended at the Cleft Lip and Palate Clinic of the UCACUE, with a population of 64 parents selected according to the inclusion and exclusion criteria. Results: 61% of parents consider that their children's condition significantly impacts their children's social and educational environment, 59% do not know anything about the manual for cleft lip and palate treatment, and 48.4% consider themselves anxious during their children's consultation. Conclusion: 58% of parents perceive an improvement in the treatment of their children in the Cleft Lip and Palate Clinic of UCACUE.

Downloads

Download data is not yet available.

Author Biographies

Estefanía Dayanna Rodríguez Mogrovejo, Universidad Católica de Cuenca

Universidad Católica de Cuenca, Cuenca, Ecuador

Santiago José Reinoso Quezada, Universidad Católica de Cuenca

Universidad Católica de Cuenca, Cuenca, Ecuador

References

Bedón Rodríguez M, Villota González L. LABIO Y PALADAR HENDIDO: TENDENCIAS ACTUALES EN EL MANEJO EXITOSO. Archivos de Medicina (Col). 2012 enero- junio; 12(1): p. 107-119.Disponible en https://www.redalyc.org/pdf/2738/273824148010.pdf

Cazar Almache M, Campos Ramírez L, Pineda D, Guillén P. Panorama epidemiológico de la fisura labiopalatina en Quito, Guayaquil y Cuenca. Ecuador, 2010-2018. Acta Odont Col. 2020; 10(1): p. 37-46. Disponible en: https://www.redalyc.org/journal/5823/582362326004/html/

Reinoso Quezada SJ, Maldonado Romero JA, Campoverde Arce CA. Factores que afectan la autopercepción de los niños con labio y paladar fisurado. Articulo de revision autopercepción de niños con LPF. Odontología. 2021 enero; 23(1): p. e2670. Disponible en: https://revistadigital.uce.edu.ec/index.php/odontologia/article/view/2670

Monasterio L, Ford A, Tastets M. FISURAS LABIO PALATINAS TRATAMIENTO MULTIDISCIPLINARIO CLEFT LIP AND PALATE. MULTIDISCIPLINARY TREATMENT. REV. MED. CLIN. CONDES. 2016 Octubre; 27(1): p. 14-21. Disponible en: https://www.elsevier.es/es-revista-revista-medica-clinica-las-condes-202-articulo-fisuras-labio-palatinas-tratamiento-multidisciplinario-S0716864016000043.

Palacios Vivar D, Alvear Córdova MC, Alvarado Cordero A, Reinoso Quezada S. Atención integral del paciente con labio y paladar fisurado Integral Treatment of pacients with cleft lip and palate. OACTIVA UC Cuenca. 2020 Mayo- Agosto; 5(2): p. 27-30. Disponible en: https://oactiva.ucacue.edu.ec/index.php/oactiva/article/view/462.

Lombardo-A. La intervención del pediatra en el niños con labio y paladar hendido. Acta Pediatr Mex. 2017 jul 267-273; 38(4). Disponible en: https://www.medigraphic.com/pdfs/actpedmex/apm-2017/apm174f.pdf

Ford M A. Tratamiento actual de las fisuras labio palatinas. Rev.Med.Clin.Condes. 2004 Enero 3-11; 15(1). Disponible en: http://www.clc.cl/clcprod/media/contenidos/pdf/MED_15_4/TratamientoLabiopalatinas.pdf

Limiñana Gras RM, Corbalán Berná J, Patró Hernández R. Afrontamiento y adaptación psicológica en padres de niños con fisura palatina. Anales de psicología. 2007 Diciembre; 23(2): p. 201-206. Disponible en: https://www.redalyc.org/pdf/167/16723204.pdf

Hlongwa PRL. "People look and ask lots of questions": caregivers' perceptions of healthcare provision and support for children born with cleft lip and palate. BMC Public Health. 2018 Apri; 18(1): p. 506. Disponible en: https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-018-5421-x.

Cordero R, Silva -Vetri M, Botero T. Educación comunitaria: impacto familiar y social en la aparición y manej de labioy/o paladar hendido. Revista Aula. 2017 julio- diciembre ; 61(1). Disponible en: https://repositorio.unphu.edu.do/handle/123456789/773?show=full

San Martín V, Osorio X. Experiences of parents of children with cleft lip palate regarding care in the different stages of surgical treatment. Enfermería: Cuidados Humanizados. 2021 Enero -Junio; 10(1): p. 44-59. Disponible en: http://www.scielo.edu.uy/scielo.php?pid=S239366062021000100044&script=sci_arttext&tlng=en. DOI: https://doi.org/10.22235/ech.v10i1.2411

Kuttenberger JOJ, Polska E. Initial counselling for cleft lip. Int. J. Oral Maxillofac. Surg. 2010; 39: p. 214-220. Disponible en: https://pubmed.ncbi.nlm.nih.gov/20079610/.

Gkantidis N, Papamanou DA, Christou P, Topouzelis N. Aesthetic outcome of cleft lip and palate treatment. Perceptions of patients, families, and health professionals compared to the general public. Journal of Cranio-Maxillofacial Surgery. 2013; 41(7): p. e105-e110. Disponible en: https://www.sciencedirect.com/science/article/abs/pii/S1010518212002739?via%3Dihub.

Feragen KB, Semb G, Heliövaara A, Lohmander A, Johannessen EC, Boysen BM, et al. Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child. Journal of Plastic Surgery and Hand Surgery. 2017; 51(1): p. 81-87. Disponible en: https://pubmed.ncbi.nlm.nih.gov/28218558/.

Published

2023-08-19

How to Cite

Rodríguez Mogrovejo, E. D., & Reinoso Quezada, S. J. (2023). Self-perception of parents to the multidisciplinary treatment of children served at the cleft lip and palate clinic of UCACUE. Odontología, 25(2), 7–13. https://doi.org/10.29166/odontologia.vol26.n2.2023-e4151

Issue

Section

Scientific article

Most read articles by the same author(s)